“Infertility Isn’t a Choice!”: Conversations on Twitter about the Financial Burden of Oncofertility Care

2024  Journal Article

“Infertility Isn’t a Choice!”: Conversations on Twitter about the Financial Burden of Oncofertility Care

Pub TLDR

This study analyzed tweets from the AYA cancer community to understand how they discuss the financial burden of oncofertility care and advocate for change. The conversations highlighted the high cost of care and proposed actions to improve access and support. Future research can explore the impact on policy change and clinical care.

DOI: 10.1089/jayao.2024.0035    PubMed ID: 38738476
 

College of Health researcher(s)

OSU Profile

Abstract

This study aimed to evaluate how the adolescent and young adult (AYA) cancer community utilized Twitter to discuss the financial challenges of oncofertility care and to advocate for change. Tweets related to oncofertility and finances (n = 166), collected over a 12-week time period encompassing AYA Cancer Awareness Week, were thematically analyzed. Conversations highlighted how the high cost of care contributed to already high emotional and social distress. Proposed actions included providing timely information more equitably, improving access to financial support, and continued advocacy of policy changes to improve access to oncofertility care. Future research can explore the potential impact on policy change and clinical care.

Corey, S.L., Ari, A., Sonpatki, M., Drizin, J.H., Gorman, J.R.(2024)“Infertility Isn’t a Choice!”: Conversations on Twitter about the Financial Burden of Oncofertility CareJournal of Adolescent and Young Adult Oncology