Opening the Conversation logo

Opening the Conversation

Taking on life after cancer together

Research study on relationships after cancer

Why we do this research

Young adult cancer survivors and their partners often face significant distress, particularly related to infertility and sexual relationships, which can negatively impact their relationships, family-building plans, and overall quality of life. Despite this, there are a lack of evidence-based programs specifically designed to support young couples after cancer.

We have conducted several studies to explore the reproductive and sexual health concerns of young adult cancer survivors and how these issues affect their health and overall well-being. We have also interviewed young adult cancer survivor-partner couples to gain insights on how couples navigate these concerns, the resources they use for support and information, and their interactions with healthcare providers. The results from these studies provided the foundation for the Opening the Conversation trial.

In the Opening the Conversation randomized controlled trial, we compared two couple-based programs designed to reduce distress among young adult breast or gynecologic cancer survivors and their partners.

Highlights

Community-Engagement

Young adult breast and gynecologic cancer survivor couples played an essential role in shaping the program, offering valuable insights on design and content.

Access

The virtual format was created to eliminate barriers for those who may not have needed services available to them, including couples in rural or underserved areas.

Study Timeline

Recruitment concluded at the end of 2024.

Future Implementation

If proven effective, the program could be expanded to enhance comprehensive cancer survivorship care.

Funding

American Cancer Society

Selected Publications

Research Team

Principal Investigator

Co-Investigators and Consultants

Community partners advocating for and supporting cancer survivors across the United States