|Title||Self-reported health of people with intellectual disability.|
|Publication Type||Journal Article|
|Year of Publication||2012|
|Authors||Fujiura, GT, Krahn, GL|
|Journal||Intellectual and developmental disabilities|
|Date Published||2012 Aug|
Self-reported health is an important outcome in the evaluation of health care but is largely ignored in favor of proxy-based reporting for people with an intellectual disability. This study briefly reviews the role of self-report in health assessment of people with intellectual disability and the challenges and recommendations that have emerged from the considerable body of research on interviewing and self-report. Limitations in current recommendations are addressed from the perspective of the cognition of self-report. The review describes conceptual directions for the reconciliation of the two contradictory themes in the treatment of self-report: the centrality given to personal perceptions and choices and the methodological concerns over the meaningfulness and validity of the self-reporting process.